Upcoming Events

Thank you to everyone who attended Nick’s Run to be Healed 5K. It was a beautiful day filled with laughter and families
coming together. 

I come to this event today noting the significance of the miracle that is before me. The first two miracles are my two sons, Nick
and Stephen. I was blessed to have Nick for 13 years and Stephen will be turning 21. I see so many children who have battled
cancer, are currently battling, or are dealing with the secondary effects of their disease. I see families like mine who lost their
child to cancer and are struggling to understand how life can continue without them. It takes so much more than medicine to
heal a child. We want them to lead a fulfilling and healthy life, both physically and emotionally. I remember the first day I met Ali.
We were standing by the elevators of the Melodies Center. His family and one of my friends are close so we made that connection.
Ali showed me the chemo shirt that he was given by another foundation. He only had to unzip it and the nurse had access to his
port. He was so excited by this. Every time I saw him he would make eye contact and greet me by my name with a big smile. Ali’s
family and all the families that take the time from their children’s battle to walk, run, raise money and awareness teach me the
power of miracles and that through
giving back we heal.

 

We are a team that keeps growing. No matter what your child is diagnosed with, it’s that common fear of the unknown that
paralyzes us. The need to know that others have walked in your footsteps and have prevailed makes events like this so powerful.
And to keep growing, to keep bringing support where it is needed most, we branch out and connect with other foundations. Like
Maddie’s Mark, Catie Hoch, Kelsey’s Promise, Nicole’s Hope, Green Drakkoman and Ballsfest. We connected with JP Honsinger’s
family who have teens that want to give back to children with life-threatening illnesses, so they came to our Nick’s Round Table teen
meeting and helped prepare for this run. We are a community of connectors. When one of ours struggles, we band together. So as
we grow and Nick’s Fight ventures into more areas of emotional support like our yoga and writing programs, we will ask others to
take on some of what we have brought to The Melodies Center.                       

 

Our children are at the heart of our mission. Coming together like this with the common goal of healing our children and supporting
their siblings and families emotionally, financially, and socially will not change. It will get stronger and more impactful. Thank you to
everyone who worked so hard for this event. My board of directors, the volunteers, the families, the Town of Clifton Park, the EMS,
police department, fire department, and our sponsors. But I especially thank Ali and his family who have taught me that no matter
where you are, with love, hope and faith, you can get through anything.

 

 

 

2018 Race Results

Flow to be Healed Yoga Program

ameliaandbellatree

ameliaandbellatree

bella

bella

bellaonmat

bellaonmat

happytree

happytree

karenandbella

karenandbella

strongfoundationbella

strongfoundationbella

twistedpyramid

twistedpyramid

yogablockandmat

yogablockandmat

yogainhall

yogainhall

yogasetup

yogasetup

Announcing Nick's Fight to be Healed Foundation's new Flow to be Healed Yoga program at The Bernard & Millie Duker's Children's Hospital in The Melodies Center!

One of our biggest missions is how to reduce stress for the entire family when a child is diagnosed with cancer. We have focused on helping with financial needs and emergency items for initial diagnosis, and anything that will distract, comfort, and keep a child connected to those they love. It's healing, effective, amazing work.

But when you can teach a child that everything they need to fight stress, fear, pain, and frustration is within, then you empower them to be the captain of their own vessel. They have an internal tool that they can literally use anywhere! Bella loves the games and the stretching. She even showed her mom some of the poses when she got home!

Karen has been a part of Nick's Fight to be Healed Foundation since its inception. A second mom to Nick and Stephen, she has dedicated much of her life to helping kids with cancer. When Karen decided to become a Registered Yoga Teacher (RYT) for children, she found her calling. She slowly brought yoga into The Melodies Center with fun games like blowing up a balloon to teach about breath or sharing books on yoga that featured different animals and how they represent yoga poses.

This was positively received by the staff at the clinic, and the program began on Friday February 17, 2017.

Not only is the dragon on the mat a symbol of our foundation, but it is a focus point. Focusing on an object or stationary point is calming, because it stills the body and brain and helps maintain balance in standing poses. It also allows the children to move their bodies in a safe way instead of looking around at distractions.

Amelia pictured in purple was one of Karen's first students and was thrilled to be there for the first gathering. Her mom says, "She LOVED it and I think it is great....it's something relaxing for the kids to do but fun as well."

Not only is yoga fun, but it helps the children deal with the uncertainty and pain that can come with cancer treatment. Karen teaches a type of breathing called Lion's Breath where you inhale, then open your mouth, stick out your tongue, and breathe out with a roar. Concentrating on breath, takes their mind off of the anxiety or discomfort of getting their port accessed, for example. The action gives them control in a situation where they don't have much at all.

Rob Saba, Director of Development, Grateful Patients and Families at Albany Medical Center, happened to be giving a tour when he came upon the yogis practicing. Rob shared how this program provides not only much needed distraction, but socialization and interaction, which helps heal.

A child's cancer journey can last up to three years and sometimes longer. Angie Silipigno, Child Life Specialist, at The Melodies Center is excited about this program because they are always looking for new and innovative ways for children to improve their experience. Nick's Fight to be Healed Foundation has always recognized that it takes more than medicine to heal a child.

Angie writes, "As I observed the first session of Flow in clinic last week, I saw wonderful things happening . . . Two young girls socializing with one another, engaging in physical activity despite the presence of tubing and IV poles, the passing of time in a positive way, exploration of their bodies, and above all, lots of laughter. One of the best parts of this program is that it can be used with any age patient, as well as parents and other caregivers . . . At a time when a patient may be feeling self-conscious about their bodies or their physical abilities, this can be utilized to help them become more aware of their body using breathing, relaxation and stretching to establish an improved level of comfort and empowerment . . . Karen has a warm and welcoming presence. She has such a natural ability to assess a patient's comfort level within a brief moment and meet them right where they are.

That's the healing power of yoga. Accepting where you are at the present moment and making the most of it. Despite the fact that these children are battling cancer, they can heal through connections, yoga poses, and laughter.